Tag Archives: end-of-life care

Special series: palliative care

Special series focused on Palliative Care including, a manuscript by Dr. Kain focused on clarification of the definition of palliative care, Conceptually Redefining Neonatal Palliative Care. Dr. Leuthner provides a compelling read on perinatal counseling with the diagnosis of Trisomy … Continue reading

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Preparing Nurses for Palliative Care in the NICU

Neonatal intensive care unit (NICU) nurses require knowledge and skill to meet the unique needs of infants and families. Increasingly, principles of palliative care are being integrated into the NICU setting to improve the quality of care. The purpose of this article is … Continue reading

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Use of Palliative Care Consultation Services for Infants With Life-Threatening Conditions in a Metropolitan Hospital

Palliative care is becoming an important component for infants with life-limiting or life-threatening conditions and their families. Yet palliative care practices appear to be inconsistent and sporadically used for infants. The purpose of this retrospective study was to describe the use of an established pediatric palliative … Continue reading

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Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU

Learning directly from bereaved parents about their experiences in the neonatal intensive care unit (NICU) can improve services at end-of-life (EOL) care. Parents who perceive that their infant suffered may report less satisfaction with care and may be at greater risk for distress after the death. Despite calls to improve … Continue reading

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Nurses Providing End-of-Life Care for Infants and Their Families in the NICU: A Review of the Literature

Nurses working in the neonatal intensive care unit (NICU) who care for dying infants and their families say they do not necessarily have the expertise or the specific training to provide quality end-of-life-care (EOLC). The purpose of this review was … Continue reading

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A post-mortem population survey on foetal-infantile end-of-life decisions: a research protocol

The death of a child before or shortly after birth is frequently preceded by an end-of-life decision (ELD). Population-based studies of incidence and characteristics of ELDs in neonates and infants are rare, and those in the foetal-infantile period (> 22 weeks … Continue reading

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Exploring NICU Nurses’ Affective Responses to End-of-Life Care

The survival rate for infants born with life-threatening problems has improved greatly over the last few decades. Nevertheless, infants still die in neonatal intensive care units (NICUs) every day. Despite existing standards of care, some aspects of end-of-life care (EOLC) … Continue reading

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